Health and economic consequences of fragile X syndrome for caregivers
DB Bailey Jr, M Raspa, E Bishop, D Mitra… - … of Developmental & …, 2012 - journals.lww.com
Objective: To describe the health and economic burden experienced by caregivers of
individuals with fragile X syndrome (FXS) and test the assumption that burden is associated
with specific dimensions of problem behavior. Methods: Three hundred fifty caregivers rated
their son or daughter's problem behavior and reported the use of medical services,
caregiving time, impact on employment, financial burden, caregiver injuries, caregiver
mental health, and prescription drug use. Results: The son's FXS posed a significant burden …
individuals with fragile X syndrome (FXS) and test the assumption that burden is associated
with specific dimensions of problem behavior. Methods: Three hundred fifty caregivers rated
their son or daughter's problem behavior and reported the use of medical services,
caregiving time, impact on employment, financial burden, caregiver injuries, caregiver
mental health, and prescription drug use. Results: The son's FXS posed a significant burden …